I’ve written before on coping with a chronic bowel illness, and helping those around you to understand what you’re going through. Today I want to talk about being a good friend, or partner to someone in that situation. I dare say a lot of people will read that last sentence, and roll their eyes. After all they’ve been friends with someone chronically ill for years. They know what they’re doing. They know how to be a good friend to that person. And they probably do.
So while I hope that those people will still read this article, and possibly gain something from it, this piece is far more aimed at those who have just become the friend or partner of someone with a severe illness. I hope to give those people some small insight in to how to approach this subject which I have so rarely seen dealt with. So below are my tips for having a good friendship or even partnership with a sickly individual.
1. If you ask how they feel, and they are honest about it, try to make sure you don’t make them feel bad afterwards for being honest. It’s hard for anyone to allow themselves to be vulnerable. For someone who is sick all the time it can be far harder. So when your friend is totally honest about how bad they might be feeling at that time take it for what it is. Proof that they trust you enough to be vulnerable with you. Try not to make them feel worse by even accidentally throwing it back in their faces later.
2. If they have any odd dietary requirements try to have an idea of what they can’t eat before you book a table anywhere. This one’s probably pretty self-explanatory, this way at least you can ask the restaurant if they cater for someone with that food allergy. If they don’t just contact your friend, and try to work out an alternative.
3. Try to plan activities that take their physical condition into account. Another self-explanatory one, I hope at least. A days shopping is welcomed I think by most (though not all) women, but walking from shop to shop for hours may simply not be physically possible for your friend. Try to plan out coffee stops, or something similar to let them catch their breath.
4. When they cancel some long laid plans at the last moment be understanding. They didn’t want to cancel. They wanted to spend time with you. It’s possible, maybe even probable that as soon as they hung up the phone they cried from frustration. Being ill in this way means that sometimes you just can’t make it. The plans might have only been for coffee a couple of minutes away. But those couple of minutes to you, could represent running a marathon with no training at all, to your friend.
5. Some illnesses have unpleasant side effects, help your friend with them. I’ll use my stomach as an example here. I have accidents. Not often, but they do happen. And sometimes I don’t notice at all. If you’re truly a friend, and you notice you’ll mention it to your friend. Quietly, without drama, without causing any fuss. Well lots of illnesses have similar side effects. Be a hero, and help your friend to not be humiliated.
6. One for the lovers now. Sometimes (I’m aware that this is dangerous ground I’m treading here.) with a chronically ill person “I don’t want to!” can actually mean “I physically can’t.”. So discuss things, in plain language so as to avoid misunderstandings.
Let’s use an example here, and let’s be plain, and simple about it, let’s talk about anal. Anal rocks. It’s often a wonderful addition to a healthy sex life. But no matter how much you might love it, if someone has a chronic bowel problem they very probably simply can’t do it. No matter how much they might want to. So instead of hearing a simple “No!”, politely, lovingly ask your partner “Why?”. Don’t find yourself stewing, festering, resenting, and potentially hurting a perfectly good relationship.
7. If your friend is housebound a lot of the time encourage them to go out, and do things. But, and this is important, don’t be really pushy about it. You want them to know that if they want to, and can get out on that particular day, that you would like their company. On the other hand if you’re too pushy it’ll start to feel like you’re obliging them to go out, even if they aren’t well enough to. It’s a fine line I know, but if you’re aware the line exists it can be easier to find it.
8. Don’t talk about their health all the time. Okay, now this one’s a little odd to explain, so bear with me. People who are ill can often hate talking about how they feel, their treatments, doctors, etc. But because often there isn’t much else going on in their lives it’s all they have to talk about. Add that to well-meaning friends who just want to lend a willing sounding board, and you can find yourself with an unending conversation that drives everyone nuts by the end. Yes, do talk with your friend, or partner about their health. But make sure you also talk about other things as well, even if only to remind them that someday they may be well enough to truly rejoin the world, and that it’s a day worth fighting for.
9. If you can go with them, and if they want you to, go to the hospital. No matter how many times they’ve gone before, hospitals are intimidating places, they’re also boring as hell, and someone to chat with in the waiting room is only a good thing. But more than that, hospitals are where people with chronic illnesses often only ever hear bad news, and sometimes they’ll need a shoulder to cry on immediately afterwards. Try to give them that.
Finally, for now, the most important thing you can do for your friend, or love if they live in this kind of situation is…
10. Tell them that you love them. Really obvious, huh? Well actually yes, and no. You should tell people you love that they are loved anyway. It’s important to feel loved. But for someone who is trapped by their body, by their health, who doesn’t necessarily see many, or even any people most days, it matters even more. When you’re trapped at home for day after day, it’s easy to feel cut off from the world. It’s also easy to feel forgotten, unloved, unwanted. Three little words can take the worst day they’ve ever had, and if not make it better, at the very least make it bearable for a little while longer.
My Random Ruminations. 